European Society for Paediatric Endocrinology
The ESPE is an international organisation with several hundred members from over 45 countries whose aim is to promote the highest levels of knowledge, research, education and clinical practice of paediatric endocrinology and metabolism throughout the world.
Executive Agency for Health and Consumers
The Executive Agency for Health and Consumers (EAHC) implements the EU Health Programme, the Consumer Programme and the Better Training for Safer Food initiative. The EURO-WABB Project is funded by the EU under the Health Programme Framework.
French Wolfram Association
The French Wolfram Association seeks to contribute to the development of medical research and to the improvement of the practices of cares relating to the syndrome of Wolfram.
INVOLVE is a UK national advisory group which supports greater public involvement in NHS, public health and social care research. The website provides information about clinical research.’ The ‘Jargon Buster’ publication provides information about clinical research processes and terminology.
International Diabetes Federation Europe
The International Diabetes Federation (IDF) is an umbrella organization of over 200 national diabetes associations in over 160 countries. IDF’s mission is to promote diabetes care, prevention and a cure worldwide.
International Society for Paediatric and Adolescent Diabetes (ISPAD)
ISPAD is a professional organization whose aims are to promote clinical and basic science, research, education and advocacy in childhood and adolescent diabetes. The strength of ISPAD lies in the scientific and clinical expertise in childhood and adolescent diabetes of its members.’ The website includes a ‘rare diabetes’ section.
Laurence Moon Bardet Biedl Society UK
The Laurence-Moon-Bardet-Biedl Society is a registered UK charity supporting people with Laurence-Moon-Bardet-Biedl Syndrome, their families and carers.
OrphaNews (Orphanet Newsletter)
OrphaNews Europe is the twice-monthly electronic newsletter of the European Union Committee of Experts on Rare Diseases. Register to receive the newsletter by email or view online.
Orphanet is the reference portal for information on rare diseases and orphan drugs, for all audiences. Orphanet’s aim is to help improve the diagnosis, care and treatment of patients with rare diseases.