Useful Links
A French group of 200 associations of patients and parents affected by a rare disease.
ASI is committed to providing support, information, and coordination worldwide to families and professionals in order to treat and cure Alström Syndrome.
‘Alström Syndrome UK provides support for those affected by Alström Syndrome, their carers and professionals working with them.’
Asociación Espanola para la investigación y ayuda del síndrome de Wolfram
Blind in Business is a charity based in the City of London. We work with blind and partially sighted people throughout the United Kingdom to find employment. All our services are free to our candidates.
The British Society for Paediatric Endocrinology and Diabetes (BSPED) aims to advance education in paediatric endocrinology and related subjects by promoting research in such areas and disseminating the useful results of such research.
Contact a Family provides support, advice and information for families with disabled children, no matter what their condition or disability.
Diabetes UK is the largest organisation in the UK working for people with diabetes, funding research, campaigning and helping people live with the condition.
EURORDIS is a non-governmental patient-driven alliance of patient organisations and individuals active in the field of rare diseases, dedicated to improving the quality of life of all people living with rare diseases in Europe.
The aims of the Association are to encourage and support research in the field of diabetes, the rapid diffusion of acquired knowledge and to facilitate its application.