Useful Links
Rare Renal Diseases (UK RA and BAPN)
Italian national resource providing information about rare disease management.
The site was set up and is monitored by families affected by this rare genetic disorder and our aim is to raise as much awareness of this syndrome as we can.
In partnership with Birmingham Children’s Hospital, WellChild has appointed a Wolfram Syndrome Family Coordinator, to work with families of children with the Syndrome; to provide information, support and advice. Find out more on the WellChild website
The site is intended to aid those who are affected by Wolfram Syndrome, information site prepared by those who are similarly affected.