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The EURO-WABB Project

An EU Rare Diseases Registry for Wolfram syndrome, Alström syndrome,
Bardet-Biedl syndrome and other rare diabetes syndromes.

To The Registry:

…for health professionals

To access the registry you will first need to register for a user account via the User Registration tab. The Principal Investigator and any other site staff should each register for an account, selecting one of the following roles:

  • Clinician

  • Research Nurse / Administrator

The Study Coordinator will approve any requests, subject to ethics and research approvals being in place. If login details aren’t received within 5 working days, please email euro-wabb@bch.nhs.uk.

Once you have received your login details please access the registry at https://registry.euro-wabb.org/

…for patients

To access the registry you will first need to register for a user account via the User Registration tab

The Study Coordinator will approve any requests for patients wishing to submit anonymous data about themselves. If login details aren’t received within 5 working days, please email euro-wabb@bch.nhs.uk.

Once you have received your login details please access the registry at https://registry.euro-wabb.org/