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The EURO-WABB Project

An EU Rare Diseases Registry for Wolfram syndrome, Alström syndrome, Bardet-Biedl syndrome and other rare diabetes syndromes.


ASUK Charity Cycle Ride

Well done to the Alstrom Syndrome UK Cyclists who cycled 200 miles from Torquay to Birmimgham, raising funds to suppor the work of the charity. You can read more about the event HERE

Read the latest Euro-WABB Newsletter

Issue 3 (Summer 2012) of the Euro-WABB Project Newsletter is now available. Click HERE to read the newsletter.

Recruitment Reaches 100 Participants!

There are now 104 participants in the registry!

Sad news regarding Prof. Alan Permutt

Sadly, Professor Alan Permutt of Washington University in St Louis passed away on 10th June 2012. Click here to read about his life and contributions to wolfram syndrome research.

Alstrom Syndrome Europe (AS-EU)

Professionals from across Europe working with patients diagnosed with Alstrom Syndrome are joining together to form a European Association – Alstrom Europe (AS EU).