Font size




Please select your preferred language

The EURO-WABB Project

An EU Rare Diseases Registry for Wolfram syndrome, Alström syndrome, Bardet-Biedl syndrome and other rare diabetes syndromes.


ISPAD 2012 - Euro-WABB Symposium

Euro-WABB will be holding a symposium at the forthcoming ISPAD meeting (10th - 13th October, Istanbul). Click HERE to read the final Programme for the ISPAD meeting.

Alstrom Syndrome on Rare Connect

Alstrom Syndrome is now “live” on the above link as part of the EURORDIS/NORD Rare Connect project which links rare disease communities world-wide and has interpretation facilities built in. The more people who use the site, the more languages will be interpreted.

Alstrom Syndrome Online Community


German Ethics Approval Given

A favourable ethical opinion was given by the Ethik-Kommission der Ärztekammer Westfalen-Lippe und der Medizinischen Fakultät der Westfälischen Wilhelms-Universität Münster on 3rd August 2012

Alstrom Europe Meeting 27/09/2012 - Agenda

To access a copy of the agenda for this meeting, please click HERE. For queries, please contact Euro-WABB Associate Partner, Kay Parkinson ( This email address is being protected from spambots. You need JavaScript enabled to view it. )

EURO-WABB Registry Offline

Please note that the Euro-WABB registry database will be offline for approximately 48 hours (until Friday 31 August 2012). Please accept our apologies for any inconvenience.