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The EURO-WABB Project

An EU Rare Diseases Registry for Wolfram syndrome, Alström syndrome, Bardet-Biedl syndrome and other rare diabetes syndromes.

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Wolfram Support and Information Day 2014

After the huge success of last year’s conference, the 2014 Wolfram Support and Information Day is taking place on Saturday 29th November at the Hilton Northampton.

We are still finalising the format of the day but it will be similar to last year; with presentations in the morning and Question and Answer sessions with the experts after lunch. The experts who have confirmed they are coming so far are: Professor Tim Barrett, Professor Raj Gupta (Neurology), Dr Claire Leonard (Psychology), Dr Liam McCarthy (Urology) and Dr Fumi Urano from Washington University School of Medicine.

We’ll have a separate “Chill Out” room for young adults, where they can relax and take time out from what can be an intense day! We will also have exhibitors for families to talk to during breaks, including Action for Blind People, SENSE, Bayer and Roche.

If you want to book a place or would like more information please contact This email address is being protected from spambots. You need JavaScript enabled to view it. or This email address is being protected from spambots. You need JavaScript enabled to view it. .

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