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The EURO-WABB Project

An EU Rare Diseases Registry for Wolfram syndrome, Alström syndrome, Bardet-Biedl syndrome and other rare diabetes syndromes.


Natural History of Wolfram Syndrome Paper Published

Researchers at IDIBELL and CIBER de Enfermedades Raras (CIBERER), Spain, have recently published in the Genetics in Medicine journal. The research updates the natural history of Wolfram syndrome, provides some clues to understand the different clinical outcomes between patients, and estimates the progression of the disease, by collecting the data from 400 patients published world-wide during the last 15 years. You access the abstract HERE