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The EURO-WABB Project

An EU Rare Diseases Registry for Wolfram syndrome, Alström syndrome, Bardet-Biedl syndrome and other rare diabetes syndromes.

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Wolfram Support and Information Day 2014

After the huge success of last year’s conference, the 2014 Wolfram Support and Information Day is taking place on Saturday 29th November at the Hilton Northampton.

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Italian Alstrom Syndrome meeting

An Italian family meeting on Alstrom Syndrome will be held on Saturday 5th October 2013. For further details please visit: www.millepini.it

Euro-WABB Project Brochure

The new Euro-Wabb Project Brochure is now available. Feedback to This email address is being protected from spambots. You need JavaScript enabled to view it. or This email address is being protected from spambots. You need JavaScript enabled to view it. would be greatly appreciated. Click HERE to read the documents

9th Joint Meeting of Paediatric Endocrinology

The 9th Joint Meeting of Paediatric Endocrinology will be held in Milan, Italy from the 19th - 22nd September 2013. We are delighted that the Euro-Wabb project will be showcased in a symposium on the opening day of the meeting. Our guest speakers are Professor Fumi Urano from Washington University, St Louis, and Professor Vincent Marion from Strasbourg, France.

Health Professional Guidelines

New Health Professional guidelines for Alstrom, Bardet-Beidl and Wolfram Syndromes are now available. Feedback by email to This email address is being protected from spambots. You need JavaScript enabled to view it. or This email address is being protected from spambots. You need JavaScript enabled to view it. would be greatly appreciated.Click HERE